Welcome to our online support service. We hope to provide a platform for questions asked and answered by actual nebuliser users. Questions such as how to choose and get the best out of your nebuliser.

We encourage you to post or ask any product related comments and ideas but please avoid any profanity or leaving your personal contact information such as email or phone numbers.

We look forward to hearing from you and will help where we can.

Tuesday 23 October 2012

Update on Cystic Fibrosis Campaign

The Cystic Fibrosis Trust have received over 11,000 signatures to their e-petition regarding the cost and availability of Kalydeco for the treatment of some patients with CF.

This has now been sent with all your comments to Vertex and to the Clinical Priorities Advisory Group (CPAG, set up by the NHS to make recommendations on Kalydeco), ahead of their meeting to discuss the recommendations on the funding of Kalydeco.

The Cystic Fibrosis Trust  aim to keep the petition going until a decision on funding is made. They believe "that this transformational medicine should be made available to all those who need it as soon as possible"

You can read all latest news and read the submitted letter 

http://www.cftrust.org.uk/pressoffice/news/kalydeco_petition_sent
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