Often we are reluctant to get involved or speak out, but occasionally when something we feel passionate about comes along it can be worth while just taking a moment to state your case. The internet can make this so much easier and whatever your feelings about the internet one of the positives is that it can be so simple to get behind a campaign and the only thing that you need to exercise is your fingers.
The The Cystic Fibrosis Trust are currently asking us to sign their online petition concerning the transformational new treatment Kalydeco which can have significant clinical benefit for some Cystic Fibrosis suffers. The Cystic Fibrosis Trust are pushing for a swift resolution between the NHS and the treatment manufacturer over costing and availability so that all who would benefit from Kalydeco can receive treatment as soon as possible.
We have added our names to the petition and if you wish to find out more there is further information available here:
http://www.cftrust.org.uk/pressoffice/pressofficepo/kalydeco_updates/kalydecoqa#wiksf
Or you can sign simply sign their petition here:
http://www.ipetitions.com/petition/campaign-for-kalydeco
And if you want to find out more about the work of Cystic Fibrosis Trust or get in touch why not check out their website:
http://www.cftrust.org.uk
No comments:
Post a Comment